Peutz-Jeghers Syndrome

Cancer Support

Due to the heightened cancer risk associated with PJS, several sites are offered here to help patients learn more about cancer and various topics related to it. This is helpful for those with cancer and for those who do not have cancer. Being educated about your options will allow you to better assist in your own care. Various support groups exist for cancer patients and their families.

Links for Additional Information

Articles of Interest
    GI (Gastro-Intestinal) Cancer
    Breast Cancer
Active & Aware
Information Resources
Hospitals & Cancer Centers

Articles of Interest

Ovarian Cancer: Patient Centered Guides
Ten Things To Do If You Suspect You Have Ovarian Cancer is an article excerpted from a book published in May 2003: Ovarian Cancer: Your Guide to Taking Control by Kristine Conner and Lauren Langford. The list is a clear guide to help you take control of the situation you may find yourself in.

The National Academies Press
The National Academies Press has the book Fulfilling the Potential of Cancer Prevention and Early Detection (2003) available to read online free of charge. Information for purchasing a hard copy of this book is available here.

HealthDay
HealthDay presents an article titled Can Genetic Research Yield Cancer Cure? by Ross Grant, a reporter for HealthDay. In the article, he talks about research into the genetics of cancer and the hopes of a cure coming from this field.

Nature Reviews
Focus: Early Detection is offered by Nature Reviews in an effort to educate about early detection of cancer.

NCI Cancer Research Portfolio
The NCI Cancer Research Portfolio lists a research project related to Peutz-Jeghers Syndrome called Causes of Cancer/Etiology Research Projects: The Role of Peutz Jegher Gene in Apoptosis

CancerSource.com
CancerSource.com offers an article by Rachel Snyder, CancerSource Staff, called New Guidelines for CAM Therapies Used in Cancer. CAM is short for complementary and alternative medical therapies.

American Cancer Society: 2003 Cancer Statistics
The American Cancer Society Cancer Statistic reports on the incidence of cancer, including the number of deaths, cases, and length of survival after diagnosis, and data regarding behaviors that affect cancer risk and the use of cancer screening.

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GI (Gastro-Intestinal) Cancer

Medscape
Medscape has a very detailed article on COX-2 inhibitors which could be important news for those with Peutz-Jeghers Syndrome and other gastrointestinal disorders. The article is Selective Cyclooxygenase-2 Inhibition: A Target in Cancer Prevention and Treatment. Links to Clinical articles about this topic are provided. Free registration is required. Contact the webmaster for assistance.

Mount Sinai Hospital, Toronto
The Mount Sinai Hospital of Toronto, Canada, has a FAQ sheet on Familial Gastrointestinal Cancer.

Breast Cancer

The Internet Journal of Oncology
The Internet Journal of Oncology published an article titled Chemoprevention of Breast Cancer: Recommendations and Rationale: U.S. Preventive Services Task Force, written by the United States Preventive Services Task Force.

Medscape: 25th Annual San Antonio Breast Cancer Symposium
Medscape conference coverage, based on selected sessions at the 25th Annual San Antonio Breast Cancer Symposium. Topics overviewed include Breast Cancer--Biology, Risk, Prevention, and Therapy.

British Medical Journal
The BMJ, British Medical Journal, offered a news article in a recent edition regarding breast cancer mortality and mammograms. The article, written by Susan Mayor, is Mammography screening nearly halves breast cancer mortality.

Active & Aware

CUREtoday.com
CURE, which stands for Cancer Updates, Research, and Education, developed a magazine for those dealing with cancer as a patient or as a caregiver. Scientific evidence is presented for the layperson.

Breast Cancer Action
The current newsletter of Breast Cancer Awareness focuses on presentations made at The 25th Annual San Antonio Breast Cancer Symposium. Archived newsletters and subscription information are available as well.

Women's Cancer Network
Developed by the Gynecologic Cancer Foundation and CancerSource, Women's Cancer Network | wcn.org is for women and their families, providing cancer information and support.

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Information Resources

CancerLynx
CancerLynx offers a wealth of information for those facing cancer as a patient or a loved one. The site is done from a cancer survivor's point of view.

CancerQuest
CancerQuest is an educational website produced by Gregg M. Orloff, Ph.D., of the Emory University Biology Department. No assumptions are made on the reader's background in biology or cancer.

Cancer Research and Prevention Foundation
News and information for researchers and patients is available at the Cancer Research and Prevention Foundation website. Their focus is on cancers that can be prevented by lifestyle changes.

Online Management of Breast Diseases
Online Management of Breast Diseases offers sections on information useful to those researching breast cancer to help with management of treatment, testing, and other concerns.

WebPath: Breast Cancer
WebPath offers a huge resource provided by the Florida State University College of Medicine. This particular link goes to a tutorial about breast cancer. The site is intended for students and healthcare workers studying pathology, so as such contains technical language. Pictures are included in the tutorial.

Association of Cancer Online Resources
The Association of Cancer Online Resources offers a huge amount of information about cancer as well as other diseases and disorders. The heart of their services is focused on the mailing lists they sponsor. Over 1 million emails are sent out per day from the acor.org lists.

National Cancer Institute
The National Cancer Institute's cancer.gov site offers a vast resource on cancer. They have information on cancer support, treatments, tests, and literature.

Hereditary Colon Cancer Association
The Hereditary Colon Cancer Association website offers information and links directed towards those affected by colon cancer and related syndromes.

American Cancer Society
The American Cancer Society is a well-known organization dedicated to supporting those affected by cancer. They provide information as well as raising support for funding cancer research.

OncoLink
OncoLink offers a wide range of cancer resources from cancer information to coping mechanisms to information on treatment options

Cancer Prevention Newsletter
NewYork-Presbyterian Hospital has a national newsletter and website, Cancer Prevention, with sections geared towards the consumer and also the medical professional. Funding is provided for the newsletter through an unrestricted grant from Pharmacia Corporation and Pfizer Inc.

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Hospitals & Cancer Centers

Roswell Park Cancer Institute
Designated as a National Cancer Institute comprehensive cancer center, Roswell Park Cancer Institute offers a holistic approach to helping cancer patients.

Memorial Sloan-Kettering Cancer Center
With a tradition of over 100 years of caring for those with cancer, Memorial Sloan-Kettering Cancer Center has a strong collaboration between their scientists and physicians.

The James Cancer Hospital
The Arthur G. James Cancer Hospital and Research Institute website is full of information about cancer as well as about their extensive hospital campus.

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Update: 05.Feb.'04