Journals, popular media, and press releases are useful for keeping abreast of relevant and current information on a variety of topics. Other sources of information include email lists maintained by various health and medical organizations. The vast pile of information that comes through the email inbox and across the desk has been culled and distilled so the amount isn't so overwhelming.
A large, though not comprehensive, list of links to abstracts of journal articles related to the syndrome. The links are organized according to topic.
News articles related to issues of the GI (gastrointestinal) system. The vast majority are not articles that would be seen in the mainstream media.
A source of information for the person just beginning to learn about genetics.
Questions and answers that are of common interest to the patient. Also includes topics that may not easily fit in the remainder of the site.
