This site is by patients, for patients. All time, energy, talents, and resources have been provided completely free of charge on a volunteer basis. The inspiration behind this site comes from a group of patients, family, friends, and their doctors who have joined an online support group hosted by the Association of Cancer Online Resources (acor.org) for those with Peutz-Jeghers Syndrome. A member of the group has a child who was diagnosed with Juvenile Polyposis. It was difficult finding information about it, so this section of the site was added to help her and others in her situation. This syndrome has touched us all in different ways. And together we can help our group and others cope with something that can at times seem overwhelming and frightening. As we gain new knowledge and insight, we will be able to pass that information on to others through email, this website, and word of mouth.

Patients, friends, family, health care professionals, and all interested parties are encouraged to join the PJS support group hosted by ACOR. We welcome families and individuals dealing with Juvenile Polyposis as well, since our treatment paths are very similar. Archives and subscription information are available at http://listserv.acor.org/archives/pjs.html.

24. June, 2002 (Original PJS Website)
06. August, 2004 (JP website)
 

07. August, 2004
 

Reviewing for approval by HON Code of Conduct (HONcode) for medical and health Web sites, 22. October, 2002.
 

Email: info@peutz-jeghers.com
Fax (US number): 831.302.3121
 

Because this is a not-for-profit group, those working on this website receive no monetary compensation for the blood, sweat, and tears they invest. Use the job title links to send an email to those listed below.