Journals, popular media, and press releases are useful for keeping abreast of relevant and current information on a variety of topics. Our researcher, Stephanie Sugars, has been tireless in her search for articles and information that will be useful to her and to others she comes into contact with. Other sources of information include email lists maintained by various health and medical organizations. The vast pile of information that comes through the email inbox and across the desk has been culled and distilled so the amount isn't so overwhelming. Use the links below or to the right to navigate through the different areas.
A collection of reports and reviews written by patients, stressing the patient's viewpoints on topics of interest.
A large, though not comprehensive, list of links to abstracts of journal articles related to the syndrome. The links are organized according to topic.
Press releases of interest to the medical consumer, mostly on topics of importance to the PJS patient.
News articles related to issues of the GI (gastrointestinal) system. The vast majority are not articles that would be seen in the mainstream media.
A source of information for the person just beginning to learn about genetics.
Questions and answers that are of common interest to the patient. Also includes topics that may not easily fit in the remainder of the site.
