Resources related to Peutz-Jeghers Syndrome are growing in number. The sites offered below are based in Great Britain. Information provided is offered for your consideration, not as an attempt at medical treatment or consultation. Please forward suggested links to the email listed at the bottom of the page.

General Practice Notebook
Describes PJS clearly with use of medical terms, though written so a lay-person can understand.

Diseases Database
Offers concise information on Peutz-Jeghers Syndrome as well as links other sites offering detailed information and pictures.

Cancer Genetics Web
Offers information and informative links on STK11, which is the gene linked to Peutz-Jeghers Syndrome. The website has an extensive amount of information on genetics, not just related to PJS.

The Human Gene Mutation Database (HGMD)
HGMD has a page on STK11, specifically mentioning nucleotide substitutions. Interest in this page would be highest in those with training in genetics.

Disease Directory
This page from the Disease Directory focuses on LKB1 and the Serine/Threonine kinase enzyme. A graphic is included to aid in understanding the topic.

Genetic Interest Group
GIG supports those affected by genetic disorders. The website offers valuable information for those interested in various disorders, genetics, and learning more.

MediChecks.com
Offers professional health screening and diagnostic testing. This particular page gives information on genetic testing for PJS.

Cancer Research UK
Brief article on the link between pancreatic cancer and family cancer syndromes, including PJS.

St. Mark's Hospital: The Polyposis Registry
St. Mark's Hospital maintains a polyposis registry. They treat many PJS patients and have a solid base of research and treatment.

St. Mark's Hospital & Academic Institute
St. Mark's Hospital is a centre for intestinal and colorectal disorders, taking patients from across the nation as well as internationally.

Wolfson Unit for Endoscopy
St. Mark's Wolfson Unit for Endoscopy has a website to highlight the procedures they offer as well as information on their academic centre. Visit the site to take an endoscopy quiz.

The Institute of Cancer Research
The Institute of Cancer Research is a leading cancer research organization. The Institute is a College of the University of London.

Institute of Child Health & Great Ormond Street Hospital for Children
This website is a joint effort of theInstitute of Child Health and the Great Ormond Street Hospital for Children. The site offers information for patients and families as well as health care professionals.

SIMR
Seriously Ill for Medical Research (SIMR) is a volunteer group of patients' promoting research into serious illnesses and medical conditions. They support humane and ethical research.

The Insurance Surgery
This is a commercial website offering services to those with pre-existing medical conditions, as well as some other situations that may make obtaining insurance difficult.

Update: 2.July'07